Mission Statement

Hemophilia Patient and Program Support (HPPS) is dedicated to providing support to patients and programs within the geographic boundaries of the Delaware Valley Chapter of the National Hemophilia Foundation:

• community outreach and education
  
• financial support for patients with hemophilia and related bleeding disorders
  
• financial support for programs providing care or research relevant to bleeding disorders

HPPS will provide services of the highest quality and will secure, to
the extent possible, the continuation of care and service programs for people with bleeding disorders.

What is HPPS?

Hemophilia Patient and Program Support (HPPS) is a charitable and educational organization created by the Delaware Valley Chapter of the National Hemophilia Foundation. HPPS was created to provide funds for community outreach, education and resources to individuals with hemophilia and related bleeding disorders residing within the geographic boundaries served by the Delaware Valley Chapter. HPPS is dedicated to insuring that patients continue to receive the highest quality of care and services at affordable costs. Working in collaboration with the Delaware Valley Chapter, HPPS will provide additional funding to help the Chapter meet patient and program needs.

HPPS has been able to financially contribute to the following initiatives of the Delaware Valley Chapter

Support for Bleeding Disorders Research Patient Scholarships Provider Scholarships for Meetings and Training Support for Family Camp Support for Summer Camp

Support for Hemophilia Program Needs Support for Patient Needs Support for Publications & Information Support for Education & Outreach Support for Legislative & Advocacy Efforts

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How does HPPS benefit you?

Patients and families do not pay dues or fees to receive periodic information and updates about HPPS. Individuals on the confidential HPPS mailing list will receive relevant information periodically including:

The"Winning Spirit" quarterly newsletter

Information about HPPS participating homecare companies

An annual patient survey to determine your ideas and preferences

Comprehensive scholarship information

Help to find the resources you need

Information about legislative initiatives

Information about family events

Information regarding support services

 

By choosing an HPPS participating homecare company you can expect:

• a full range of services to meet your needs (pharmacy, delivery, support, financial consulting, etc.);
  

• a toll free number and pharmacists, 24 hours a day, with overnight shipment—regardless of your location;

• your home care company will stock adequate inventory to meet your needs both on a short and long-term basis;

• financial help for patient life needs, when need is determined;
  

• to be accepted with pre-existing medical conditions;
  

• to be provided with expected costs for medications and services and informed of any changes to those expected costs;
  

• to receive help with insurance related issues;
  

• to know, up front, of any company policy regarding discontinuation of services related to loss of coverage or inability to pay;
  

• to be informed of all product recalls and withdrawals within one business day;
  

• that your confidentiality will be maintained.

HPPS reviews the compliance of participating companies with the above standards of care. If you choose to obtain blood clotting products and supplies from a HPPS participating company, please advise the Delaware Valley Chapter and your treatment center if the services do not meet the above standards.

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