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Pennsylvania Advocacy Day in Harrisburg - April 17th



We hope you can join us for PA Advocacy Day as we make visits to local members of the PA House of Representatives and Senate to discuss significant issues we are facing right now in Pennsylvania. We will also be asking legislators to continue important state funding support to the seven hemophilia programs in Pennsylvania.


You can plan to ride the bus with us from the Plymouth Meeting Mall (leaving about 7:00 am) or drive to Harrisburg. Either way, please help us by participating!


Download registration(docx) or (pdf) and mail or email this form to: Lindsay Frei lindsayf@hemophiliasupport.org



2018 Issues

Hemophilia Program Line Item

The Eastern and Western Pennsylvania Chapters of the National Hemophilia Foundation have been very busy in Harrisburg this year meeting with members of the governor’s office and legislators to discuss the Hemophilia Program Line Item and the need to keep it separate and level funded. We were told from the start that the Governor would once again consolidate it with Cystic Fibrosis, Cooley’s Anemia and Sickle Cell. Because we had meetings so early in the year, our hope is that the line item will be immediately separated out in the House and Senate versions of the budget. This will be our main issue when we have our annual Advocacy Day on Tuesday, April 17.

House Bill 2113

Both Chapters will be supporting House Bill 2113 introduced by Representative Donna Oberlander (R-Allegheny). This bill would amend Pennsylvania’s Unfair Insurance Practices Act to prohibit commercial insurers from making coverage changes during the policy year that deny or increase the cost of a treatment, service or prescription that a patient is already receiving. We have joined a large coalition for this issue, which also will be part of our PA Advocacy Day.


PA Capitol