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Advocacy Avenue




For the past few days, our organizations have been encouraging you to call, tweet and email your Senators to vote No on the Better Care Reconciliation Act (BCRA).  On June 27th, Senate Majority Leader Mitch McConnell delayed the Senate vote on the bill but the vote could occur quickly if Leader McConnell is able to build enough support for the bill.


The Senate will be in recess until July 10th, which means that we have about 10 days to contact our Senators and tell them how this bill would hurt our community. Here's what you can do to protect your access to healthcare:

  • Call and/or visit your Senator's local district office. Find contact information at  GovTrack.us 
  • Attend local events with your Senator, including Town Hall Meetings. To find a Town Hall near you, visit the  Town Hall Project or inquire with the district office.
  • Thank Senators via social media who have committed to voting no on the Better Care Reconciliation Act.
  • Write an op-ed for your local paper. Write about your experiences under the Affordable Care Act or about the personal cost of having a bleeding disorder and reach out to your local media outlets.

If you need additional information and talking points, go to  www.hemophilia.org/actnow.


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