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Advocacy Avenue

 

 

Advocacy Update

By Curt Krouse, Executive Director

 

The Eastern and Western Pennsylvania Chapters of the National Hemophilia Foundation held their annual Advocacy Retreat at the Hershey Lodge in Hershey, PA on Tuesday, October 24. In attendance were staff and board members from each chapter, representatives from four HTCs, patients, and advocacy leaders from NHF and HFA.


The purpose of the retreat was to evaluate areas of improvement and our accomplishments in 2017. We also looked at various issues that we may want to advocate for in 2018, which will be included in our agenda for PA Advocacy Day in the Spring.


If anyone in the community wants to bring a concern to our attention, please contact Curt Krouse at the EPC office. Once our plan has been developed, we will share it through The Winning Spirit, emails and social media. We look forward to your involvement, and to another successful year of advocacy.

 

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